Can you help us please?

We are finding out how people’s lives have been during the coronavirus pandemic.

This is a one year study involving researchers and organisations across the UK to find out and report on how coronavirus is affecting the lives of people with a learning disability. It is being funded by UK Research and Innovation.

Phase 1 October 2020 to February 2021

We want to thank the many people who have helped us in the first phase of the study.  Sincere thanks go to people with a learning disability who have been interviewed, the people and organisations who have helped to find people, their supporters, friends and family carers. The researchers have now interviewed 149 people.  This is the first of 3 interviews. 

Thank You – Easy Read

Phase 2 – from end of March 2021

We are asking new people to sign our Expression of Interest form please. Project logo showing a map of wales

Why is the study being done?

Coronavirus has led to changes for all of us. New social rules and changes in our day to day lives are not always easy to live with.  How have the lives of people with learning disabilities been changed and how do they feel about this?  We want to find out from people and then we want to share what we find out with policy makers, services and people themselves regularly during the year.

Who do we want to take part in the study?

We would like to hear from you if:

  • you are a person with a learning disability
  • you are a parent or unpaid carer of a person with a learning disability
  • you are a paid support worker supporting a person with a learning disability or
  • you work for an organisation that knows people who might want to share their stories.

Who is doing this study in Wales?

In Wales researchers from the University of South Wales and Cardiff University will be doing the study with help from Learning Disability Wales, the All Wales Forum of Parents and Carers and All Wales People First.

What will taking part involve?

  • The researchers want to interview 200 people with a learning disability in Wales.
  • Some adults with learning disabilities may not be able to talk to researchers so they want to speak to 100 family carers or paid support staff who could tell researchers about what has happened to those people too
  • The researchers will interview people 3 times during the year. The survey interview will be done to suit the person. For example online, face to face (virtual) or by telephone.
  • Questions will be about their wellbeing, health, social life, their services, the issues that are worrying them and how coronavirus has affected their lives.

Please sign up your interest

If you are interested or are willing to help us find people to take part please sign up by completing the short Expression of Interest Form here.

By giving us your contact details, you are only saying you are interested in finding out more about the research study. It does not mean that you are agreeing to take part in it.

We will give you more information later on so you can decide if you want to take part. We will not use your contact details for any other reason.

More information

Easy Read Participant Information

Easy Read briefing on the study can be found here

Video by Ffion, Chair of Caerphilly People First

Video by Sophie, Co-Chair of the Learning Disability Ministerial Advisory Group

Video by Gerraint, Lead Ambassador for Engage to Change

To find out more about the study contact:

University of South Wales Professor Stuart Todd and Edward Oloidi

Cardiff University Dr. Stephen Beyer

Learning Disability Wales Karen Warner: 029 20681160 or email

All Wales Forum of Parents and Carers. Phone: 02920 811120 or 07976 223992 or email Josh Law: or Gwen Anslow

All Wales People First. Tracey Drew. Phone 07956 082211